FOR IMMEDIATE RELEASE
Contact: Joe O’Leary | Joe.OLeary@cga.ct.gov | 508-479-4969
MONDAY – RARE DISEASE DAY BRINGS ADVOCATES TO DISCUSS SOLUTIONS, NEW MAPPING PROJECT
Who: State Senator Saud Anwar (D-South Windsor)
State Representative Cristin McCarthy-Vahey
Members of the Connecticut Rare Disease Advisory Board
Where: Legislative Office Building, Second Floor Atrium
When: Monday, March 16, 2026; Press conference scheduled for 11:30 a.m., advocacy, RDAC meeting, forum featuring individuals with rare diseases, medical professionals, research professionals starting at 9 a.m.
On Monday, March 16, advocates will call for awareness regarding rare diseases in Connecticut and discuss a new mapping project through the Rare Disease Advisory Board intended to improve the research, diagnosis and treatment of rare diseases. Rare diseases are defined as those impacting fewer than 200,000 Americans; more than 300,000 state residents live with rare diseases today.
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